BINAstoria

Aims of  BINAstoria

Since working together and building relationships is indispensable in taking care for patients with IBD, we strive for a good collaboration with different stakeholders.

Underneath we emphasize on the patients, nurses and study coordinators, but even other stakeholders as doctors, other hospital related staff members, patient association, pharmaceutical industry,…. are important.

BINAstoria aims to:

  • facilitate and provide an effective framework for communication and cooperation
  • support IBD nurses and IBD study coordinators so they can offer IBD patients:
    • an accessible and low-threshold contact point
    • holistic care, together with a multidisciplinary team
  • organize education for patients in strong collaboration with other stakeholders
  • offer the opportunity to meet, share experiences and learn from each other:
    • yearly two formal meetings and a big national meeting on the Belgian Week of Gastroenterology (BWGE)
    • BINAstoria newsletter two times a year
    • several workshops in partnership with the pharmaceutical industry
    • informal networking by e-mail, phone,...
    • close collaboration and cooperation with
      • gastroenterologists (BIRD)
      • N-ECCO (Nurses - European Crohn and Colitis organisation)
      • patient associations
  • full recognition of the job as IBD nurse
  • optimization of IBD research centers
  • collaboration between research units
  • share information and experiences
  • work with same strategies
  • optimization of transfer from patients in clinical trials to standard IBD care and vice versa
  • strengthen the position of Belgium as area for IBD clinical trials in academic and nonacademic sites

  

LIST OF PARTICIPANTS

Legend:       Coordinating PI     Participants

1. BE-SMART | 2. CEDAR-UC | 3. COMBINED THERAPY OF BIOLOGICALS AND NEW ORAL DRUGS. | 4. DETECT | 5. DNA BANKING | 6. GENGISCAN | 7. HELP-AID | 8. I-CARE | 9. IMMUNIZATION | 10. LOVE | 11. PACIFIC | 12. PEDIATRIC | 13. SPARE
1 2 3 4 5 6 7 8 9 10 11 12 13
- - x x x x
Leila Amininejad x x x
Saskia Appelmans
Filip Baert x x x x x x
Thomas Billiet
Patrick Bontems
Peter Bossuyt x x x x x x
Guillaume Burnet
Peter Burvenich
Philippe Caenepeel
Olivier Cajot
Christophe Claessens x
Jean-Charles Coche
Jean-Louis Coenegrachts
Arnaud Colard x
Filip Couturier
Anneline Cremer x x
Cléo Croonen
Francois D'Heygere x
Steven De Coninck
Elisabeth De Greef x
Marc De Maeyer
Marc De Reuck
Elodie De Ruyck
Nicolas de Suray
Martine De Vos x x x x
Benedicte De Vroey
Stefan Delen
Marie-Armelle Denis
Pieter Dewint x x
Olivier Dewit x x x
Sophie Dewit x x
Joris Dutre
Marc Etienne
Marc Ferrante x x x x x
René Fiasse
Fernand Fontaine x x
Denis Franchimont x x x x x x
Pieter Hindryckx x
Ilse Hoffman
Evelien Humblet x
Saskia Ilegems
Guy Lambrecht x x x
Pierre Lammens
Claire Liefferinckx x
Triana Lobaton
Edouard Louis x x x x x
Elisabeth Macken x
Marie-Christine Mairlot
Jean-Marc Maisin
Fazia Mana x
Walter Margos
Fady Mokaddem
Kim Moubax
Vinciane Muls
Carmen Musala
Michele Ngassa
Maja Noman
Hanne Ooms
An Outtier
Romy Ouziel
Harald Peeters
Annelies Posen
Philippe Potvin
Lieven Pouillon
Jean-Francois Rahier x x x x x x
Catherine Reenaers x x x
João Sabino
Michael Schapira
Nathalie Schoofs
Nele Schoofs
Alexandra Sermeus
Francoise Smets
Michaël Somers
Dirk Staessen
Marjan Steppe
Beatrijs Strubbe x
Jo Swinnen
Clara Thienpont
Haydeh Vafa
Gert Van Assche
Stephanie Van Biervliet
Frank Van De Mierop
Gaëtan Van Den Steen
Jurgen Van Dongen
Evi Van Dyck
Andre Van Gossum
Philippe Van Hootegem x x
Catherine Van Kemseke
Wouter Van Moerkercke x x x
Steven Van Outryve
Stijn Vanden Branden x x x x
Jo Vandervoort
Gigi Veereman x
Severine Vermeire x x x
Annelies Verreth
Bram Verstockt
Francis Weyn
Barbara Willandt