BIRD is gradually building a national database to collect epidemiological data about IBD in Belgium and data on the use of therapies in the treatment of IBD.
The BIRD Registry, a national IBD registry, uses the UR-CARE platform provided by ECCO (European Crohn´s and Colitis Organisation - ECCO - UR-CARE (ecco-ibd.eu)) to collect IBD data (captured in standard of care practice). The aim of the UR-CARE platform is to improve daily clinical practice and to perform future research studies (locally, nationally and internationally) in the field of IBD. It can also be used to gain better insights in (specific) IBD characteristics and treatments locally, nationally and internationally.
UR-CARE is available to study groups (e.g. BIRD is the Belgian, national study group within UR-CARE) and to individual participating centers.
The BIRD Registry will be used to perform retrospective studies and to obtain a comprehensive overview (summary reports) of IBD characteristics/demographics at a national level.
You can learn more about the Registry and practicalities of entering data here (for BIRD members only)
Want to participate in the BIRD Registry?
Contact info@birdgroup.be
As of September 2025, the BIRD Registry contains medical data of 5901 IBD patients across 24 activated Belgian centres. An additional 11 centres are expected to be activated soon, which will include all academic centers in Belgium and most major non-academic hospitals in the country.
Logistical support of the setup of the BIRD registry in 2025 is provided by our sponsors.
